Perhaps you could organize such a visit for a 2nd opinion regarding safe levels of exercise? I would like to thank you very much for providing me with your thoughts. Benefits: no blood thinning (with attendant risks) needed. I have been feeling better than before the surgery and I feel with better condition on the trails. Aortic stenosis, the narrowing of the aortic valve. Maybe a genewho knows. I am a 23 year old male, have BAV with mild AR. Fast forward, he is now 13 and we went yesterday for his yearly. Does lifting weights up to 100 pounds and being cleared for push-ups, pull-ups, all cardio, etc., sound reasonable? You would never know meeting these celebrities that they had a CHD. Bicuspid aortic disease occurs when a defect is present in the valve that opens and shuts to allow blood flow from the heart through the aorta. He/she can talk with you about the generalities of operation in your circumstance. Average STS score was 1.7%. BAV is one of the most common congenital heart conditions, occurring in about 2% of individuals. Will surgery mean I can do more or less training? My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. That said I have a resting HR of ~40 (always have). I then played football my last two years of high school as well as playing hockey and throwing shot put for the track team. Im not sure theres enough information at hand to offer sound advice. All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. ODonnell, now 54, said her heart attack began after she helped an enormous woman struggling to get out of her car in a parking lot. Thank you very much for the answer! Other heart parameters are very good (no bigger chamber or aorta). Any person in my family there was no problem with the heart. The incidence of bicuspid aortic valve and complications. Thanks! This might reasonably translate into some measurable improvement related to physical exercise. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. Normal LV diastolic function. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? Thank you very much for your thoughtful response. I had a Medtronic Freestyle valve fitted in May 2002, did exactly as directed regarding exercise etc. A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. For patients with bioprosthetic valves after heart valve surgery, the valve itself is not usually affected by weight-lifting activities. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. A faulty aortic valve isn't something you want to have considering that it helps blood flow out of the heart and through the rest of the body. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . In general, we recommend no weight lifting in patients with BAV if the aortic diameter is greater than 4.0 cm. Pathology. I excercise 2-3 times a week, namely cardio and weight lifting. The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. Congrats! The video is just 1 min 42 sec long. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? The GOPs failure to get the 118th Congress going shows how the performative nature of todays Trumpified party is making it incapable of governing. Thank you very much for writing such a thorough and well informed article. Dwayne E. Russell March 6, 2023, Erin Feaker During pregnancy. I knew none of this until a year ago. I found a cardiologist with whom Im quite happy with. There, Lucci learned that she had a 90 percent blockage in the main artery of her heart and a 70 percent blockage in another, and needed emergency surgery. The use of a less invasive transcatheter therapy in this . The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. Sbp. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. Im a 30 yr old male, training 5 times a week rowing and strength training. A HR limit of 120 will be tough, I would guess. O'Donell took the aspirin recommended for people who think they are suffering a heart attack just in case, but didnt call 911. Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). And I dont know if my Cardiologist follows the same guidlines, but I dont think hes under the impression that Im any kind of athlete either. Next year I would like to finish my first marathon but now I dont know whether I should keep running. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. In large-scale pre-participation cardiac screening programs for young, competitive athletes, BAV is one of the most commonly identified abnormalities. Call 911. These are the data I got in my last MTB race. I have not had any issues since my surgery. Only two cusps, commissures and sinuses are seen in the less common "pure" bicuspid aortic valve subtype. I had a Bentall with mechanical valve done in Feb 2017. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. How are you? Thoracic aortic aneurysm, an abnormal bulge in the part of the aorta located in the . This is thought to occur at a rate of about 0.1% per year in adults. Do you think the jiu-jitsu (e.g. Thank you for your time Dr.! The idea of somehow restricting the HR may be attractive as a means of curtailing strenuous activity. What advise can you give to someone in my position? I had AVR exactly 1 year ago to the date. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. Very likely an operation will be needed at some point in the future. My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. Abstract. Several contemporary elite triathletes have BAV and Ive written about their stories in: Examples from other sports would include Arnold Schwarzenegger, among others. Thus far shes had only minor bruising (shes 6ft and has a solid build). A bicuspid aortic valve only has two of these leaflets. We have got two completely different opinions from our cardiologists: I feel as though Im recovering well and, having no other conditions or comorbidities, rapidly. I would like to get back into it, but obviously I have been having some concerns. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? Is there any research on this? I have repeatedly asked each follow up, if continued marathon training is OK. Im always told it is fine with the old adage of listening to your body. Then, Arnold's pulmonary valve was switched to the aortic position. Ive been told by my cardiologist that they think I should probably avoid competitive rowing and weight lifting. It is very informative. I see Im not alone. You already have a cardiologist looking after you. When we go back to re-replace a patients prosthetic valve, for some reason, it usually has to be chiseled out from the heart. Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. To the extent that any operation fixes the stenosis or regurgitation, we might expect better efficiency from the heart. It will probably take a visit with a surgeon (who has all of the pertinent details) to outline the possibilities for you. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. Any guidelines? Bicuspid aortic valve (BAV) is the most frequent congenital cardiac defect, and affects 0.5-2% of live births. If reoperation is needed in your case, this would be something to discuss. I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. There, they detected I had a bicuspid aortic valve." This meant the valve which controls the flow of blood from the heart's left-ventricle chamber to the main artery had only two flaps instead . There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. I am riding my 3 rd anual Belgian Waffle Ride today. How much worse does it have to get before it should be replaced? I cant imagine life without CrossFit, but I wont be able to continue will I? Consensus guidelines from the Proceedings of the 36th Bethesda Conference recommend: The first recommendation does not include the endurance sports. The aortic valve prevents blood from flowing back into the left ventricle of the heart. Benefits: long-term durability. I have had three annual Echocardigrams, the first two showed mild stenosis, mild LV thickening. In April of this year (2016), I discovered I had a BAV in the worst manner possible. Thank you,dr Creswell, Im aware that those days are past, but to abandon every activity seems like a prison sentence What is safe side threshold? Athletes with BAV and enlargement of the aorta to greater than 4.5 cm can participate safely only in low intensity sports (eg, golf, bowling, billiards). Many congenital heart defects cause few or no symptoms. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). While i appreciate you are not my cardiologist and we`ve never met is there anything generic out there that i can look at to gain an idea. Notify me of follow-up comments by email. Your doctors will be in the best position to offer advice because they will be most familiar with your case. Im not looking forward competitions nor marathons. And now my aortic root is 42 mm. I have moderate to severe regurgitation and the heart is enlarged as far as I understood. I had it replaced in 2014 and am now 16. Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. I was shocked. Its not around incision, its mainly middle of left side. Great article! November Cover Star Gal Gadot Is in a League of Her Own A First Look at Diana and Margaret Thatcher in The Crown Season Four Celebs Roast Trump in Rhyme for John Lithgows Trumpty Dumpty Book Brace Yourself for George Clooneys Apocalyptic Movie The Midnight Sky The Best Shows and Movies Streaming This October Inside Netflixs Latest Binge-able Escape, Emily in Paris The Crowns Young Stars on Prince Charles and Princess Di From the Archive: How Hollywood Sharks, Mafia Kingpins, and Cinematic Geniuses Shaped The Godfather Not a subscriber? these conditions occur mostly during my exercises at the gym and Im left very lightheaded and shortness of breathe. Bicuspid aortic valve. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. I did run 1-2 times/week for a 1.5 months now, the situation is getting a little better but still I feel like a 80 years old. "Until then, stay close.. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. with valve area of 1.4 cm2 and aorta of 4.1 cms Im 33 from UK and have known about my BAV since I was around 18. ( I was much worse though). Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. Lynn. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. The procedure was performed at the Cleveland Clinic. There is very little scientific evidence to guide us here. Just still unsure however if my bioprosthetic valve affects my cross country running times. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. Mild aortic valve disease without symptoms may only require frequent health checkups. I currently run 40 -50km a week and do two 2 hour intensive yoga sessions a week. Their experiences have been variable, and perhaps for a variety of reasons. Thank you for your assistance in this matter. Patients need operation if there is severe stenosis or regurgitation of the aortic valve.or if the nearby aorta becomes moderately enlarged. While she ended up being okay, she advised other women to be more cautious. Most patients can resume all of these activities by 2-3 months after operation. Enlarged ascending aorta 42-43 mm You should discuss this possibility with your doctor(s). Sadly, no crystal ball is available. Dr. Larry, very helpful content. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Thank you so much. Thanks for sharing your experience, Randy. Dont see why HIIT should be excluded. Maybe thats not surprising, given that Im a heart surgeon and that many individuals with BAV need operation at some point. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. Obviously, mild to moderate would be somewhere in between. Thats an issue to pursue with your sons doctor(s). BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. A cadaver if valve is then used to replace his pulmonary valve. May 11, 2010 -- Barbara Walters said on Monday that her upcoming heart surgery, a procedure known as an aortic valve replacement, will hopefully correct a problem of which . After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? Symptoms of bicuspid aortic valve disease most commonly develop in middle age in people with a history of a childhood heart murmur. Your responses mean a lot to myself and no doubt others on this forum. The potential downside relates to durability. In fact, in some people they can go undiagnosed for years. Like you mention, one theory is related to the aortic blood flow. Thanks for the enlightening article. 1. He is certainly expert in the area of drug therapy to reduce the rate of aortic enlargement. For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve.